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Showing posts with the label brain tumor

Preparing for Radiation: Wrap Up

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  Over the next few weeks, I'll be sharing regular posts about how I'm preparing for radiation. I'm hoping these can help someone else, as I struggled to find a conversational source like this that dealt with the subject. For more information on my brain tumor, check out these posts .  I've spent the last three months' worth of Mondays sharing with you all about how I came to do radiation therapy for my brain tumor and how I've been preparing for it. My hope is that these posts can serve as insight, advice, or even just commiseration for others that are facing brain radiation, as I struggled to find a resource out there like this one. If you have found value in these posts, I would greatly appreciate it if you'd let me know in the comments and/or share this series with anyone in your sphere that might be able to benefit from them. The Monday that this post is published marks the final week of my treatment. As I mentioned in this post , the literature suggest...

Preparing for Radiation: Five Wishes

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  Over the next few weeks, I'll be sharing regular posts about how I'm preparing for radiation. I'm hoping these can help someone else, as I struggled to find a conversational source like this that dealt with the subject. For more information on my brain tumor, check out these posts .    Whether because of an accident, serious illness, or natural aging, we will all face the end of our lives. If you're breathing, this pertains to you. Most of us don't want to think about dying though, I know I didn't, and so we put off conversations and avoid thinking about our preferences when it comes to end of life care. Sadly, that can result in our loved ones being put in a difficult position of not knowing what we would want and having to make choices on our behalf, choices that can be difficult or even traumatizing, and may not be what we would prefer at all. How can we avoid that burden being put on those closest to us? By thinking ahead a little and recording our prefere...

Preparing for Radiation: Designing the Lounge

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  Over the next few weeks, I'll be sharing regular posts about how I'm preparing for radiation. I'm hoping these can help someone else, as I struggled to find a conversational source like this that dealt with the subject. For more information on my brain tumor, check out these posts .    When we found out that I was going to have to do radiation therapy, my husband started dreaming of a lounge. Initially it was called the "Rest Room", but when we talked about it, it sounded a lot like restroom, and that's just a strange place to hang out with people 😂, so my kids renamed it the "Lounge." Always with taking care of me front-of-mind, he wanted to make sure he'd be able to keep an eye on me and be available if I needed him while I recuperated from radiation. In February, my son moved into his own home and vacated the room across the hall from my husband's office, creating the perfect space. That way, my husband could work and still feel like ...

Trusting God in the Midst of Suffering: Waiting Patiently and Confidently

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  We were given this hope when we were saved. (If we already have something, we don’t need to hope for it. But if we look forward to something we don’t yet have, we must wait patiently and confidently.)   Romans 8:24-25 NLT  Hope. We delved into it yesterday, but today it becomes more real, more palpable. Let’s dig in! Today’s verse says that we were given “this” hope when we were saved. What hope is that? Well, it came in the previous verse: And we believers also groan, even though we have the Holy Spirit within us as a foretaste of future glory, for we long for our bodies to be released from sin and suffering. We, too, wait with eager hope for the day when God will give us our full rights as his adopted children, including the new bodies he has promised us.   Romans 8:23   When we were saved, God gave us the future hope of realizing our full rights as His adopted children, including our heavenly bodies. These bodies will not know pain or suffering, decay...

Preparing for Radiation: My First Appointment

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   Over the next few weeks, I'll be sharing regular posts about how I'm preparing for radiation. I'm hoping these can help someone else, as I struggled to find a conversational source like this that dealt with the subject. For more information on my brain tumor, check out these posts .  After my first radiation treatment, I was excited to come home and write this post and tell you about all the wonderful and crazy things that had taken place, but there's so much more life going on right now than I have bandwidth for, and writing a post fell to the bottom of the list. That worked out well, though, because each day added on a little more insight as well as intrigue, and I think this post will have benefitted from waiting until the end of the week to be written. Come along with me and find out about what I learned in my first five days of radiation therapy!  As expected, my husband had us up before the crack of dawn on the first day of treatment. He actually set his ala...

Trusting God in the Midst of Suffering: The Good Old Days

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  Bring us back to yourself, O LORD, so that we may return to you; renew our life as in days before. Lamentations 5:21  Do you ever think back to the “Good Old Days?” Times when things were easier, happier? When your children lived at home, or when they were little? Before some major health or job crisis? Do you ever long for that joy to be restored? Jeremiah did. This book I’ve read through over the last week, Lamentations, catalogs the hurt and degradation of his people. This was all well-deserved, as he often mentions, because of how the people had turned away from God, but that doesn’t make it good. Jeremiah knew what life could be like, and he wanted it back.   The title of this book, Lamentations, means, “Expression of sorrow; cries of grief; the act of bewailing.”* This is not sadness. It is not a mild depression or feeling down. This is a desperate, gut-wrenching expression of distress. Jeremiah’s whole world had been turned upside-down, as indeed it had for h...

Preparing for Radiation: Getting the Ball Rolling

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  Over the next few weeks, I'll be sharing regular posts about how I'm preparing for radiation. I'm hoping these can help someone else, as I struggled to find a conversational source like this that dealt with the subject. For more information on my brain tumor, check out these posts .  From the time I was given my setup appointment for June 2nd, my husband and I felt like a clock was ticking. On the one hand, we felt like we would get more information at the appointment, including a promised schedule. On the other hand, this appointment would start to make it all real, and it certainly did! I think I came out of it feeling a little shell-shocked. For those interested, and perhaps those who might come after me and want to know for themselves, I'll walk you through our day.  As per usual, we arrived for my appointment about an hour beforehand. My husband is a big proponent of being early! I factored this in, though, and packed us a lunch to eat since my appointment time w...

Preparing for Radiation: Meal Prepping

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  Over the next few weeks, I'll be sharing regular posts about how I'm preparing for radiation. I'm hoping these can help someone else, as I struggled to find a conversational source like this that dealt with the subject. For more information on my brain tumor, check out these posts .    When I learned that I had about four and a half months before I started radiation therapy, I wanted to take advantage of every opportunity to both do the things that were important to me, like my trip with my son, and prepare for the road ahead. They tell you a little about what to expect, but treatment hits every person a little differently so they can't say much for sure. My primary symptoms associated with my tumor (I have lots associated with other illnesses but we're hoping they won't be affected) are nausea and vertigo. My doctor has warned me that these will likely increase as treatment progresses because radiation causes inflammation to the area of the tumor, effectively...